IEEE Day 2021 Event ‘Health & Justice for All’ Transparent Design for Wellbeing

An IEEE Day 2021 Event. ‘Health & Justice for All.’ Celebrate with the Section, Computer Chapter, PACE SIGHT Group & Digital (Dignity) Inclusion, Identity, Trust & Agency (DIITA) new Workflow ‘Transparent Design for Wellbeing’ discussion about ‘Do Good Things Health & Justice for All,’ a continuation of the previous project, ‘Do Good Things Justice for All’ incorporating lessons from COVID-19, including planning for resilience. This excellent project will provide many opportunities for IEEE Members, students, community members, stakeholders to Volunteer and to do good things to advance technology for humanity. Team members will discuss their topics; attendees are encouraged to participate in the discussion. Members, stakeholders, students are encouraged to volunteer, reach out to schools, other community volunteer organizations, technical society members, and others and to participate in the SIGHT Group, and or the IEEE SA DIITA Group.

Paula Muller, PhD will begin the discussion. We will describe Alzheimer’s disease and other dementias as an example of the complexity and the importance of health literacy, accessibility, and culturally and linguistically appropriate systems.

1 in 3 older adults dies from Alzheimer’s disease and other dementias. During COVID-19, Alzheimer’s and dementia deaths have increased by 16%. In New Jersey, this number was 20% higher than average.
The main risk factor is age. One in nine people age 65 and older (11.3%) has Alzheimer’s dementia. Almost two-thirds of Americans with Alzheimer’s are women. Older Black Americans are about twice as likely to have Alzheimer’s or other dementias as older Whites. Older Hispanics are about one and one-half times as likely to have Alzheimer’s or other dementias as older Whites.

In summary, because of the prevalence of the disease, and the importance of early diagnosis, education of all population is imperative. Family members, as well as patients, need to be educated, culturally and linguistically appropriate systems are necessary to support everyone affected, and as the disease progresses and it becomes more difficult to communicate verbally with the persons living with the disease, other mechanisms need to be developed.

Preparation for the IEEE SA DIITA Workflow – Transparent Design for Wellbeing 1Q 2022 Guided Round Table: 1) Health & Medical Device Literacy; 2) culturally & linguistically appropriate system design; 3) increasing diversity & reducing bias in technology & AI ML technology; 4) increasing diversity & reducing bias in research, research literature, & projects.

Resilience planning for the future from lessons learned during COVID-19. Group inclusion & accessibility Pilot solution connecting people to improve Health & Medical Device literacy as an example for the IEEE SA DIITA Workflow.

Needs: People must monitor & care for themselves & family at home, with telehealth, in clinic, for chronic, acute & emergency health conditions. Solution: Easy to use Medical Device guides, w Languages, expanded Lexicon/vocabulary, Closed Captioning (CC), screen readers, uses iii. Information and Communications Technology (ICT) to connect iv. Medical Devices.

United Nations Sustainable Development Goals 3, 4 & 10 during a global pandemic, and in preparation for a resilient future. Connects people quickly to Medical Device user guides, related health condition, literacy materials Culturally and Linguistically Appropriate Systems CLAS-HHS to improve health literacy.

Training Community of Interest (CoI): patients, caregivers, disabled, those with preexisting conditions, ambulance corps, first responders, stakeholders, standards volunteers, trainees, healthcare professionals, during telemedicine session, etc.

Pilot demonstrates connecting medical devices (thermometer, bp cuff, pulse ox, scale, glucose meter, etc.) using a simple technology solution, machine/ human readable code GUDID & database with user instructions, health condition monitoring, and emergency procedure, by levels of literacy, English, Spanish, Closed Captioning, & Blind Screen Reader.

Community Lived Experience Profiles Storytelling, Lexicon Standards & collaborations to reduce Bias in data & algorithms, to improve healthcare for minorities, underrepresented, women, children, etc. Connects People & Medical Devices to Internet of Things (IoT).

Online open access Pilot includes multimedia Seminars in English, Spanish, Closed Captioning, Blind Screen Reader, Events: Seminar – Alzheimer’s Community Educator; Interviews/Storytelling with Community Members & professionals Ambulance Corps, Students, Trainees, etc. Shared on IEEE TV, Social Media, Blogs, publications, conferences, etc.

Co-sponsored by: TK Srinivas

Speaker(s): Dr Paula Muller,

Agenda:
Meet & Greet to Celebrate IEEE Day 2021

Introduce Health and Justice for All Transparent Design for Wellbeing

Team Members discuss their Topics

Interactive Discussions

Planning for Guided Round Table 1Q 2022

Virtual: https://events.vtools.ieee.org/m/281817